WITHOUT A VOICE YOU ARE SPEECHLESS
My name is Hanno Bos (43) and I am going to lose my voice. Not just for a while… but for the rest of my life. Three years ago I was diagnosed with ALS (Amyotrofic Lateral Sclerosis). I became silent.
Luckily, there is a treatment now that can enable me to be heard for a while longer. Beside being able to use my voice for a longer period of time, the treatment will also ensure I can take care of my son Tygo for a little while longer. This treatment costs money, lots of it. And if there’s one thing I don’t have, it is the time to wait until this treatment will be paid for by my insurance.
WHAT DO I USE MY VOICE FOR?
Reading aloud, lots of reading aloud. I want to be remembered. Children connect with their parents through speech, starting at a very young age. My son Tygo is 4 years old. Rianne and I want to tell and teach him so much more than we already have.
My voice is crucial. I want to have the option to love and cherish my family and to keep on communicating with them for as long as possible. Without a voice you truly are speechless.
A VOICE IN THE MATTER?
I am a dedicated member of the ALS patient advisory committee in the Netherlands. I give lectures and advice to families on how to deal with this disease.
My voice is crucial. I want to keep the possibility to help others and communicate with them. Without a voice you are speechless.
WHAT MY VOICE IS ASKING FOR?
Help. Your donation will help me pay for the treatment that isn’t yet covered by my insurance.